We are deeply committed to supporting patients within the rare disease community and offer a comprehensive range of services geared toward education, access, and advocacy.
Comprehensive support for patients with Fabry disease
CareConnectPSS®—personalized support services for patients—represents Sanofi Genzyme’s more than 25-year commitment to supporting the rare disease community. CareConnectPSS is designed to support each patient’s unique journey.
CareConnectPSS support includes:
Contact a case manager
1-800-745-4447, Option 3
Connect with us online
Copay Assistance Program
Helping eligible patients with out-of-pocket costs
The CareConnectPSS Copay Assistance Program helps qualified individuals in the United States who are prescribed Fabrazyme pay for their eligible out-of-pocket drug and infusion-related (mixing and administration of the drug as well as infusion supplies such as saline, IV tubing, etc.) expenses, including copays, coinsurance, and deductibles.
Charitable Access Program
Delivering on our commitment to providing Fabrazyme
The Charitable Access Program (CAP) has been established in the United States through the Genzyme Charitable Foundation, Inc. This program is committed to providing Fabrazyme to individuals who:
Qualified individuals with Fabry disease, whose physicians have recommended treatment with Fabrazyme, may be eligible for the Charitable Access Program. If you are ineligible for the program, your Case Manager will work with you and your health care providers to explore alternative coverage options
To be considered for the program:
Please note, all Charitable Access Program applications are reviewed monthly and are kept confidential. The Charitable Access Program is considered a temporary program. Patients and their families are expected to continue to explore alternative resources with the assistance of a CareConnectPSS Case Manager. These resources may include:
Disclaimer: the Sanofi Genzyme Charitable Access Program may be discontinued at any time at the discretion of the Charitable Access Program Committee.
Need more information?
Fill out our request information form to get more details on disease education, treatment information, financial support, and patient support.
Access to these and other services is voluntary, and patients are not obligated to begin treatment if they contact us. You and your physician will make all treatment-related decisions, and, most importantly, the privacy and security of your personal information is always protected
Committed to increasing the understanding of Fabry disease
The Fabry Registry, sponsored and administered by Sanofi Genzyme, is the largest international patient registry database dedicated to Fabry disease. It is led by a group of doctors with extensive experience in managing patients with Fabry disease.
The Registry helps doctors and researchers understand how Fabry disease and Fabrazyme treatment affect different people.
Talk to your doctor about enrolling in the Registry, and please visit registrynxt.com for more information.
There are a number of organizations dedicated to providing information and support to people living with Fabry disease and other genetic disorders. Note that the opinions expressed by the organizations below do not necessarily reflect the views of Sanofi Genzyme. Sanofi Genzyme does not maintain and is not responsible for the content of communications for the listed organizations or their websites, with the exception of discoverfabry.com and registrynxt.com, which are websites developed and maintained by Sanofi Genzyme.
This is not intended to be a comprehensive list of Fabry disease support organizations. These listings do not constitute an endorsement by Sanofi Genzyme of information provided by any other organizations.