Patient Support Networks

As awareness of Fabry disease grows, so does the number of groups that support the Fabry community and others living with genetic disorders. The list below includes many of these groups, in the United States and globally.

United States

FSIG - Fabry Support & Information Group
www.fabry.org/

Genetic Alliance
www.geneticalliance.org

International Center for Fabry Disease
www.mssm.edu/genetics/fabry

National Institute of Neurological Disorders and Stroke (NINDS)
www.ninds.nih.gov

National Organization for Rare Disorders (NORD)
www.rarediseases.org

^{Fabry websites around the world}

Canadian Fabry Association
http://www.fabrycanada.com/

Canadian Organisation for Rare Disorders (CORD)
www.raredisorders.ca

CLIMB - Children Living With Inherited Metabolic Diseases
www.climb.org.uk

Fabry Disease Society U.K.
www.fabry.org.uk

Fabry Spain
www.fabry-spain.org

Fabry Support & Informatie Groep Nederland
www.fabry.nl

LDA - Lysosomal Diseases Australia
www.lda.org.au

Morbus Fabry (Germany)
www.fabry-selbsthilfegruppe.de

Nordic Fabry Website
www.fabry.dk